Join us at BDSRA’s 2018 Family Conference July 19 – 22 at the Nashville Airport Marriott!
Registration for the 2018 BDSRA Conference is now live!
We look forward to seeing you July 19 – 22, 2018 in Nashville, TN for the 2018 BDSRA Family Conference! The deadline to register and be guaranteed a conference t-shirt is June 27, 2018. You can start your registration here. If you have questions about registration contact Sara Burton Aldrich, Registration Manager at 518-930-2673 or by email at Sarab@SSWMeetings.com. Follow our conference Facebook page for updates!
Sponsor the Family Conference Today!
It is individual contributors at all levels that make this incredible support program possible. With your sponsorship, we remain committed to bridging the gaps in geography, knowledge and collaboration in service of our mission for families. Learn more about sponsorship options and register here: https://bdsra.org/conference-sponsorship/
A Word About Hotel Reservations
- Room Block and Rates: BDSRA has reserved a block of room at the Nashville Airport Marriott for attendees. The discounted group rate is $139.00 per night plus tax (currently at 15.25% plus $2.50 city occupancy fee).
- Click here to book your reservation online or you can call the hotel at 1(800)228-9290 or (615)889-9300. If making a reservation by phone, please be sure to state you are with the Batten Disease Conference to ensure your reservation is within our group block.*Please note, at this time Marriott Custom Web Pages are not supported on the web browser, “Google Chrome”*
- If you require an ADA accessible room or suite please contact Judy Gero at (615) 872-2834. She is primarily in the office from 9:00am to 5:00pm. Monday – Friday.
- Reservation Deadline: All reservations must be made by Wednesday, June 27, 2018 in order to secure the discounted rate.
These stipends are available thanks to generous donors who want to be sure that families who need financial support are able to attend the conference. Click here for the stipend application form. Deadline to submit is April 20, 2018. Please contact Tracy Kirby at firstname.lastname@example.org or 614-973-6013 for more information.
The Canadian Chapter has a small fund to be used for stipends on a first-come first-served basis. Please contact Bev at email@example.com.
Please note: If you are submitting a stipend application, we advise you to confirm your registration but hold off on processing payment until you receive notice regarding your application.
Conference Menu Information
Click here to view a listing of the conference menu.
There are many opportunities to volunteer for the BDSRA Annual Conference. We are looking for volunteers in Affected Childcare, registration, Teddy Bear Club, and SIBs Chaperones.
Read more about the volunteer positions here.
Sign up to volunteer here.
About the Conference
The BDSRA’s signature event each year is our family conference. Last year over 450 family members, children, and researchers attended to learn about patient care, education, and the latest research. As in years past, you’ll have access to experts sharing research posters and helping to answer questions, connect with other parents, and attend sessions while medical care is provided for your child, and of course, the SIB program’s outings and sessions are always great fun!