We are excited to share this research update from Collaborations Pharmaceuticals. Thank you to all those who have helped to fund the research that has made this a reality. To read more about the partnership between BDSRA and Taylor’s Tale […]

The BDSRA Board of Directors has several open seats for the term beginning January 2019. If you have expertise you feel would be relevant and beneficial to the organization and are interested in learning more about serving, please contact the […]

The expansion of Batten Disease treatment options is crucial to our community’s future. We are excited to share this announcement from REGENXBIO who plans to submit an IND for a new gene therapy for CLN2 in 2019. Because of news […]