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BDSRA Welcomes New Board Members

December 3, 2013

The results are in!  BDSRA held annual elections in November, 2013, and we are happy to announce the names of our new and returning board members.  Returning with us will be Rob Geer and Tracy VanHoutan.  We’re happy to welcome […]

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BDSRA Receives Genzyme Patient Advocacy Leadership (PAL) Award

September 30, 2013

Genzyme Announces Winners of Patient Advocacy Leadership (PAL) Awards CAMBRIDGE, Mass.–(BUSINESS WIRE)–September 30, 2013 Genzyme, a Sanofi company (EURONEXT: SAN and NYSE: SNY), today announced the recipients of the 2013 Genzyme Patient Advocacy Leadership (PAL) Awards. This global grant program […]

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BioMarin Pharmaceutical Inc. launches first phase of study in Hamburg, Germany

September 24, 2013

We applaud BioMarin Pharmaceutical Inc. for the official start of the Enzyme Replacement Therapy (ERT) trial in Germany. Here is the link for more details about the study: BioMarin doses first patient in CLN-2 study Contact Janet Nuttall at for enrollment […]

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