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January 2014 Newsletter

January 15, 2014

The January 2014 edition of the BDSRA newsletter is now posted.  For updates on clinical trials, research, advocacy, board news, and donor gifts, click here:  January 2014 Illuminator  

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Clinical Trial Updates

January 5, 2014

Three major research investigations in Batten disease continue to seek patients to participate in clinical trials in the U.S. and Europe.  Studies led by the Department of Genetic Medicine at Weill Cornell Medical College in New York City, by the University of […]

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Join the BDSRA 2013 Annual Fund

December 13, 2013

You can double your donaton to the annual fund by making your year-end gift by December 31st, 2013. Generous challenge match pledges of $30,000 have been made to help donors refill Sophie’s piggy bank to help fund a cure for […]

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