Register For Our Free Email Newsletter
Please enter your name.
Please enter a valid email address.
Something went wrong. Please check your entries and try again.
BDSRA Virtual 5K
June 9th is International Batten Disease Awareness Day! Our goal is to honor and support those affected by Batten disease and raise awareness. Join us as we celebrate families around the world and raise money for research! […]
Continue ReadingBDSRA Memorial
Dear BDSRA Community, As you may know, BDSRA is creating a new Memorial to replace the beloved one that was built in 2004. The original Memorial was created by a group of families who had lost someone to Batten Disease […]
Continue ReadingRead the latest issue of the newsletter
The latest issue of the newsletter is here! Click here to read about the new executive director, how you can advocate in your state, and all things family conference: https://conta.cc/2GNSeVy
Continue Reading
