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Annual Report 2016

October 25, 2017

BDSRA’s Annual Report is now available! 2016 was an eventful year for us. We were approaching 30 years as an organization and reflected upon the many events, families and researchers that made it so memorable. From our first Batten Awareness […]

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BDSRA Announces Board Nominations for November Elections

October 5, 2017

  October 5, 2017 Dear BDSRA Friends, The Batten community has had an historic year in treatment and science—with an FDA approved treatment for CLN2, gene therapies moving forward, and new discoveries announced seemingly each week. Help BDSRA keep this […]

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The newest issue of the Illuminator

October 3, 2017

The latest issue of the Illuminator is here! This edition is dedicated to all things research.  Click here to read your newsletter

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