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2018 BDSRA Family Conference Registration is open!

March 1, 2018

Registration for the 2018 BDSRA Conference is now live! We look forward to seeing you July 19 – 22, 2018 in Nashville, TN for the 2018 BDSRA Family Conference! The deadline to register and be guaranteed a conference t-shirt is June 27, […]

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BDSRA is now accepting letters of intent (LOI) for 2018!

February 26, 2018

Focus for 2018’s Research Funding Round: Biomarkers BDSRA seeks letters of intent (LOI) from the Batten and larger lysosomal disease research community for innovative technologies in biomarkers for any of the 14 forms of Batten disease. Development of, or improvement of […]

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Rare Disease Day

February 23, 2018

Rare Disease Week on Capitol Hill : February 25-March 1 Join advocates, patients, and parents from all over the country on Capitol Hill for a week filled with advocacy events. Click on the title above to sign up for events and find […]

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