Register For Our Free Email Newsletter

BDSRA Memorial

May 9, 2019

Dear BDSRA Community, As you may know, BDSRA is creating a new Memorial to replace the beloved one that was built in 2004. The original Memorial was created by a group of families who had lost someone to Batten Disease […]

Continue Reading

Read the latest issue of the newsletter

May 1, 2019

The latest issue of the newsletter is here! Click here to read about the new executive director, how you can advocate in your state, and all things family conference:

Continue Reading

BDSRA Hires New Executive Director

April 16, 2019
Continue Reading