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Clinical Trial Updates

January 5, 2014

Three major research investigations in Batten disease continue to seek patients to participate in clinical trials in the U.S. and Europe.  Studies led by the Department of Genetic Medicine at Weill Cornell Medical College in New York City, by the University of […]

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Join the BDSRA 2013 Annual Fund

December 13, 2013

You can double your donaton to the annual fund by making your year-end gift by December 31st, 2013. Generous challenge match pledges of $30,000 have been made to help donors refill Sophie’s piggy bank to help fund a cure for […]

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BDSRA Welcomes New Board Members

December 3, 2013

The results are in!  BDSRA held annual elections in November, 2013, and we are happy to announce the names of our new and returning board members.  Returning with us will be Rob Geer and Tracy VanHoutan.  We’re happy to welcome […]

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