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Get Involved and Make it Happen: February is membership month for BDSRA

February 10, 2014

To join or renew your 2014 annual membership, which is $40 per family, go to 2014 Membership Dues Why Join BDSRA?  Because membership is a vital link to others facing Batten disease, and membership strength is a leading indicator to policy […]

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The Lysosomal Disease Network’s 10th Annual WORLDSymposium™ 2014

February 10, 2014

Please join us Monday, February 10, 2014 – Friday, February 14, 2014 This symposium is designed for basic, translational and clinical researchers, patient advocacy groups, clinicians, and all others who are interested in learning more about the latest  discoveries in […]

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January 2014 Newsletter

January 15, 2014

The January 2014 edition of the BDSRA newsletter is now posted.  For updates on clinical trials, research, advocacy, board news, and donor gifts, click here:  January 2014 Illuminator  

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