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Run the Creek 5K

March 22, 2014

Run the Creek 5k March 22, 2014 9:00 am Highland Creek Elementary 7242 Highland Creek Parkway Charlotte NC 28269 Online Registration and more info at http://jonesracingcompany.com/run-the-creek-5k/

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Get Involved and Make it Happen: February is membership month for BDSRA

February 10, 2014

To join or renew your 2014 annual membership, which is $40 per family, go to 2014 Membership Dues Why Join BDSRA?  Because membership is a vital link to others facing Batten disease, and membership strength is a leading indicator to policy […]

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The Lysosomal Disease Network’s 10th Annual WORLDSymposium™ 2014

February 10, 2014

Please join us Monday, February 10, 2014 – Friday, February 14, 2014 This symposium is designed for basic, translational and clinical researchers, patient advocacy groups, clinicians, and all others who are interested in learning more about the latest  discoveries in […]

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