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Emerging Research Conference Travel Award Winners

October 18, 2018

An Ngoc Dang Do, MD PhD NICHD, NIH For many young investigators of rare diseases, having the opportunities to present the research and to discuss in-person ideas for partnerships with other researchers, families and organizations are crucial. This encourages continued […]

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Collaborations Pharmaceuticals, Inc. to partner with Washington University in St. Louis on Batten Disease

September 7, 2018

We are excited to share this research update from Collaborations Pharmaceuticals. Thank you to all those who have helped to fund the research that has made this a reality. To read more about the partnership between BDSRA and Taylor’s Tale […]

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BDSRA 2019 Board Nominations

August 30, 2018

The BDSRA Board of Directors has several open seats for the term beginning January 2019. If you have expertise you feel would be relevant and beneficial to the organization and are interested in learning more about serving, please contact the […]

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