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June issue of the Illuminator newsletter

June 21, 2019

The newsletter is here! Click here to read the latest issue.

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BDSRA Virtual 5K

May 17, 2019

      June 9th is International Batten Disease Awareness Day! Our goal is to honor and support those affected by Batten disease and raise awareness. Join us as we celebrate families around the world and raise money for research! […]

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BDSRA Memorial

May 9, 2019

Dear BDSRA Community, As you may know, BDSRA is creating a new Memorial to replace the beloved one that was built in 2004. The original Memorial was created by a group of families who had lost someone to Batten Disease […]

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