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BDSRA Memorial Names

July 2, 2019

The Batten disease community is one of support and strength, and we know that remembering loved ones is so important to you and your family. If you would like to have a name added to the Batten Disease Memorial, or […]

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June issue of the Illuminator newsletter

June 21, 2019

The newsletter is here! Click here to read the latest issue.

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BDSRA Virtual 5K

May 17, 2019

      June 9th is International Batten Disease Awareness Day! Our goal is to honor and support those affected by Batten disease and raise awareness. Join us as we celebrate families around the world and raise money for research! […]

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