BDSRA Membership

Membership for individuals or families is $40 (each individual wishing to vote must have their own membership). Your annual dues provide you with the following benefit

  • Discounts on genetic testing
  • Voting privileges in the annual Board of Directors election (one vote per paid membership)
  • Membership dues also help BDSRA provide the following support for ALL families affected by Batten disease:
    • Printed educational materials about Batten disease and related topics
    • Staff support to review and fund research
    • Programs, services and support provided by BDSRA staff, Board of Directors,Medical Advisory Board and Scientific Advisory Board
    • Access to experienced Batten disease medical professionals and facilities through our Centers of Excellence (Columbus, OH; Boston, MA; Rochester, NY; Portland, OR; Houston, TX; Argentina and Serbia)


  • Price: $40.00
  • American Express