Media Contacts
If you are a journalist or member of the media and would like more information or to arrange an interview, please contact:
Margie Frazier, Ph.D., Executive Director
mfrazier@bdsra.org
Toll-free: 1-800-448-4570 ext. 11
Direct office: 614-973-6011
1175 Dublin Road, Columbus, Ohio 43215
Facebook: www.facebook/BDSRA
Twitter: www.twitter/BDSRA
Youtube:
Media – Raising Awareness About Batten Disease
Public Service Announcements (PSA’s) – coming soon
Guidelines for Reporting and Writing about People with Disabilities – coming soon
Press Releases and Statements – coming soon
Fast Facts about Batten Disease – coming soon
Learn about our families affected by Batten disease
Find a Batten disease expert
Logos/Flyers
To request logos for publication, please email Tracy Kirby.
Batten disease informational brochure
