BDSRA’s Annual Report is now available! 2016 was an eventful year for us. We were approaching 30 years as an organization and reflected upon the many events, families and researchers that made it so memorable.
From our first Batten Awareness Weekend Virtual 5K to family contributions to a CLN3 and education textbook in the works, contributions were made to our growing community from every corner of the United States and far beyond. Thank you for everything you’ve done with us. We are glad to share with you the summary of our accomplishments and celebrate what we have been able to do together.
To read the 2016 BDSRA Annual report click here
To subscribe to our newsletter and receive an email of future publications as soon as they are released fill out this short form: https://bdsra.org/about-bdsra/illuminator-newsletter/