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BDSRA Hires New Executive Director

April 16, 2019
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BDSRA Board of Directors

November 20, 2018

Brock Benroth is a small business owner, and the married father to two daughters: Kate, who had CLN2 and is a Batten angel and her older sister Lauren, who is a carrier. He has joined the board because through his […]

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BDSRA Executive Director

October 18, 2018

BDSRA is currently accepting applications for the position of Executive Director. Founded in 1987, our long-term vision is a world without Batten disease. Our mission is to support Batten families, fund and facilitate research for treatment and a cure, and […]

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