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February Funding Partners!

March 23, 2018

The often grey and cold winter month of February brings with it two reasons to feel warm and grateful. The Froio and Ferrandino families are deeply appreciated members of the BDSRA community. Both have lost beloved children far too soon […]

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Volunteer Spotlight: Nationwide Insurance

March 23, 2018

BDSRA is grateful for a wonderful group of employees from Nationwide Insurance in Columbus, Ohio who have said “Yes!” many times this year to helping families. They first learned about the BDSRA’s work through a colleague, Ivana Polonijo, who works […]

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Rare Disease Day Recap

March 22, 2018

BDSRA’s community was very active during this year’s Rare Disease Week. Several hundred rare advocates visited their Congressional offices on Capitol Hill, February 27th and 28th. Among them were Jennifer VanHoutan from Illinois, and Sandra and Stephen Lehrman from North Carolina. Their children and […]

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