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From Bench to Bedside, Getting to an FDA Approval

May 17, 2018

It is an exciting time for Batten research! As new research and potential trials are announced it is important that as a community that we understand the typical path research takes from the lab bench to patient bedside. Global Genes […]

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Batten Connect and Laps 4 Life

May 17, 2018

Margie’s trip to Manitoba started with the Batten Connect Information Sessions. The goal of these sessions was to teach the community more about Batten disease and the needs of Batten families. The first session was geared toward teachers, administrators, school […]

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Family Conference Agenda

May 4, 2018

We are excited to share the tentative agenda for the 2018 BDSRA Family Conference with you today. To see this year’s agenda click here: https://bit.ly/2KyZ5D4 As we get closer to July we will post updates on the keynote speakers and describe […]

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