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BDSRA Executive Director

October 18, 2018

BDSRA is currently accepting applications for the position of Executive Director. Founded in 1987, our long-term vision is a world without Batten disease. Our mission is to support Batten families, fund and facilitate research for treatment and a cure, and […]

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Emerging Research Conference Travel Award Winners

October 18, 2018

An Ngoc Dang Do, MD PhD NICHD, NIH For many young investigators of rare diseases, having the opportunities to present the research and to discuss in-person ideas for partnerships with other researchers, families and organizations are crucial. This encourages continued […]

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Collaborations Pharmaceuticals, Inc. to partner with Washington University in St. Louis on Batten Disease

September 7, 2018

We are excited to share this research update from Collaborations Pharmaceuticals. Thank you to all those who have helped to fund the research that has made this a reality. To read more about the partnership between BDSRA and Taylor’s Tale […]

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