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Sibling Highlight: Award Winning Poet Shalini Rana

June 20, 2018

In April, Shalini Rana, sibling of Shiv Rana CLN6, won third place in the Steger Poetry Prize. The Steger Poetry Prize is a prestigious award presented by celebrated poet Nikki Giovanni at Virginia Tech University. This year there were over 100 entries which were narrowed down to […]

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From Bench to Bedside, Getting to an FDA Approval

May 17, 2018

It is an exciting time for Batten research! As new research and potential trials are announced it is important that as a community that we understand the typical path research takes from the lab bench to patient bedside. Global Genes […]

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Batten Connect and Laps 4 Life

May 17, 2018

Margie’s trip to Manitoba started with the Batten Connect Information Sessions. The goal of these sessions was to teach the community more about Batten disease and the needs of Batten families. The first session was geared toward teachers, administrators, school […]

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