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BDSRA Board of Directors

November 20, 2018

Brock Benroth is a small business owner, and the married father to two daughters: Kate, who had CLN2 and is a Batten angel and her older sister Lauren, who is a carrier. He has joined the board because through his […]

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BDSRA Executive Director

October 18, 2018

BDSRA is currently accepting applications for the position of Executive Director. Founded in 1987, our long-term vision is a world without Batten disease. Our mission is to support Batten families, fund and facilitate research for treatment and a cure, and […]

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Emerging Research Conference Travel Award Winners

October 18, 2018

An Ngoc Dang Do, MD PhD NICHD, NIH For many young investigators of rare diseases, having the opportunities to present the research and to discuss in-person ideas for partnerships with other researchers, families and organizations are crucial. This encourages continued […]

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