Quarterly newsletter that contains the latest on research, features children from around the world with Batten Disease, general information applicable to families, as well as fundraising information and events.
April 2010
January 2010
October 2009
July 2009
April 2009
January 2009
October 2008
July 2008
April 2008
January 2008
April 2003
October 2000
July 2000
The Lighthouse
The Lighthouse is a publication by the BDSRA to assist those that have lost loved ones, especially by the devastation of Batten Disease. It strives to inspire, provide comfort, and give guidance.
