Documents, articles, downloads, audio and video from the community events and worldwide happenings in and around Batten Disease.

Recent Bulletins

Production toots horn for ailing youngsters
Updated: 2010-03-11 07:34:21
Pavlo Nominated for a Juno Award
Updated: 2010-03-05 08:16:14
Jasper Against Batten on NBC 5 Chicago
Updated: 2010-03-03 07:43:45

Help Raise Funds

Donate to Batten Disease and help fund the necessary research developments to find solutions to Batten Disease.

Donate To BDSRA Online

Help Raise Funds

Donate to Batten Disease and help fund the necessary research developments to find solutions to Batten Disease.

BDSRA Logo

Recently BDSRA underwent a change to our logo. This new logo is for your use in any printed materials you might like to print and share for your fundraising events, letters, and press releases. We have two additional logos available. If you need further assistance with logos, please contact the Director of Development at 866-287-7233.

BDSRA Fact Sheet



Sample Press Release

Use this sample press release to share your family story or upcoming events with your local media outlets.

Email Campaign Template



Poker Run Planning Guide



WalkAThon Planning Guide

WalkAThon's are a fun and easy activity to plan and raise funds for BDSRA. You will be amazed at the amount of support and generosity that your friends, family members and business contacts will give you, simply because you ask.

Golf Outing Planning Guide



Fundraising Guide



BDSRA Postage Now Available!

Private label postage now available on Zazzle.com! This is a unique opportunity to help build awareness to our cause. Please be sure to check out additional Batten Disease merchandise and postage from other supporters as well.

BDSRA Brochure

View and download the newest BDSRA brochure. The brochure is great for spreading awareness about Batten Disease or asking people to make a donation.