BDSRA, Connecting Help, Hope and Need

One family’s story

Rogers Family
Trina and Bob Rodgers of Boise, Idaho followed a typical path for many couples after meeting and getting married in 2000.  Both born and raised in the Boise Valley, their focus on family and service kept them busy caring for daughters Paige, 11, and Hannah, 9.  Their hours were filled with activities that surrounded the two sisters and their involved and happy school days.  That changed abruptly in 2011, when the family received the devastating news that Hannah had juvenile Batten disease. In the years since Hannah’s diagnosis, the Rodgers’ have faced enormous challenges in seeking services and providing the best environment they can create for their children.  At several turns they sought out the help of BDSRA to assist with school issues, adjustments, and medical needs.  In their mind, it takes a village to care for a child with Batten disease, and BDSRA is a big part of that village.
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Zeke Holt

Zeke Holt
Late Infantile – CLN2
Birth Date: 11/19/2009
Deceased Date: 3/23/2014
Location: Toledo, OH, U.S.
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Ali Vise

ALi Vise
Infantile — CLN1
Birth Date: 07/09/2007
Deceased Date: 09/16/2014
Location: Pearcy, AR, U.S.
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