BDSRA: Batten Disease Support and Research Association
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faces 

These are our children, the faces of Batten . . .   M      N       O       P      
Mariah Mallon, and brother Zach
Mariah's birthdate is 11/4/94
Diagnosed in January 2005 with Juvenile NCL
Our home is in Fond du Lac, WI

Mom's e-mail:
wildside4u2003@yahoo.com
Blake Mashburn Blake Mashburn
born 12/14/83
died 3/15/04 of juvenile
lived in Siler City, NC
Ryan w/brothers & pet Ryan Maynard
Birthday is 5/15/1985
Diagnosis – Juvenile Battens
Blesses many in Colorado Springs, CO

Ethan McCord Ethan McCord  
Born 7/5/90 and died 10/9/02 of   
Infantile NCL
  
Ethan lived in Abbeville, South Carolina 
vmccord@wctel.net 
Christopher McDonough Christopher McDonough 
Born  12/7/85 
Juvenile NCL
Lives in Orland Park, Illinois 
barblarmcd@aol.com
Keith McDurmond Keith McDurmond
Born 4/15/1983
Died 2/21/1992
Infantile
Keith lived in Berwick,LA
Leah McFarlane Leah McFarlane 
Born  11/8/87
Died 12/26/02
 
Juvenile NCL
Leah lived in Hamlin, New York
 
kcoon1@rochester.rr.com
Matthew Thomas McGee

Matthew Thomas McGee
Lived 4/30/1995 to 4/13/05
Late Infantile
King, NC

Charlotte Lynne McGinty Charlotte Lynne McGinty 
Born 4/17/78 
Died 12/15/98 
Juvenile NCL
Lived in Lakewood, Colorado
mom's e-mail: cassie0102@aol.com
Cole McGuire Cole McGuire 
Born  8/23/93 
Died  10/12/01
Late Infantile NCL 
Cole lived in Louisville, KY 
Colesbandit@aol.com
Heather McNellege Heather McNellege  
Born 2/11/88 
Died 1/21/03
 
Infantile NCL  
Heather lived in Robertsdale, AL
Savannah Meras Savannah Meras  
Born  8/16/91  
Died  9/18/98  
Late Infantile NCL 
Savannah lived in Upland, CA
Michael Alan Metcalf Michael Alan Metcalf 
Born  5/30/92 
Juvenile NCL 
Lives in White Bear Twsp., MN 
joni_metcalf@hotmail.com
Joey and Billy Milani

Joey and Billy Milani
Billy born 9/24/89 and died 10/1/06
Joey born 1/18/93
Late Infantile NCL
Frederick, MD

Amber Mitchell Amber Mitchell
Lived from December 9, 1994
to September 8,1999
Late infantile
Lived in Bryan, Texas
Aidan Daniel Moberg
Born 8/24/99 - Died 5/17/05
late infantile
lived in Whitefish, MT
mom's email -
luckyme8896@yahoo.com
aylor Lee Mohr Taylor Lee Mohr
Born 10/01/2003
Diagnosed January 2008
Late Infantile
Lives in Ute, Iowa
Jeffrey Montavon

Jeffrey Montavon
Born 8/2/88
Juvenile

Lives in Compton, IL http://www.myspace.com/tmntjeff

Jesse Don Moody Jesse Don Moody
Born 3/4/97
Died 9/25/04
Late Infantile
Lived in Center, Texas
Justin Moore Justin Moore
Born 12/2/90
Juvenile
Lives in Moundsville, WV
Sondra Mortell Cassondra Mortell
She lived from 7/7/91 to 12/24/2007
Juvenile NCL 
Sondra lived in Gardner, Kansa
s
Casey Mueller Casey Mueller  
Born 5/1/84   
Juvenile NCL  
Lives in Glen Burnie, MD
 
Caroline Nichols Caroline Nichols
Born 6/1/98
Late Infantile
Lives in Virginia Beach, VA
Kirstin Noon
Born 9/03/85
Kirstin lives in Hawthorne Woods, IL
She is pictured, right, with her mother, Joanne Noon.

 
Nathan Olien Nathan Olien
Born 8/12/96
Died 1/17/02
Late Infantile 
Nathan lived in Fargo, ND
email lcolien@hotmail.com
www.caringbridge.com/mn/nathanolien
Derrick Olsen Derrick C. Olsen
Born 7/23/81
Died 5/2/92
late infantile NCL
lived in Fairborn, OH
Sarah Osmoe Sarah Osmoe  
Born 11/20/77 and lived until 11/16/06   
Juvenile NCL  
Hettick, IL
Steven Otto Steven Otto
Born 12/17/92
Died 2/4/03
Late infantile
Steven lived in Frederick, MD

Daniel Pagan Daniel Pagan
Lived from 5/10/94 until 4/18/05
Infantile NCL
Meriden, CT
Maria Pagan Maria Pagan
Born 10/7/91
Died 4/27/04
Infantile NCL
Lived in Meriden, CT
Lauren Parker Lauren Parker  
Lived May 29, 1987 to June 10, 2007
Juvenile NCL  
Lived in Cordova, TN   
ternicole@msn.com
Dylan Robert Patterson

Dylan Robert Patterson
Born July 10, 2002
early/ late Infantile Batten Disease
Born in Rushville, IN.
e-mail - dylanhope05@yahoo.com
www.geocities.com/dylanhope05/love.html

Keaton Ray Payne Keaton Ray Payne 
Born  12/30/93
Died  5/4/01  
 
Late Infantile 
Lived in Knottsville, Kentucky 
cindykrp@peoplepc.com
Casey Petri w/painted face

Casey Petri
Born 5/21/81
Died 4/21/03

Juvenile NCL
Lived in Leander, TX

David Peterson with sister Ellen David Peterson with sister Ellen
Born 11/5/78 - Died 9/1/05
Juvenile
Lived in Sacramento,
CA
Howard Pitts Howard Pitts
Born  4/15/72
Died  4/1/97  
 
Late Infantile 
Howard lived in Keizer, Oregon 
Taylor Porter

Taylor Porter 
Born  1/28/93
Died  9/27/01
 
Infantile NCL 
Taylor lived in Indianapolis, IN

Westley Evans Powell Westley Evans Powell  
Born  4/10/80  
Died  3/3/92  
Late Infantile NCL  
Lived in Elkhart, Indiana  
laurielca@comcast.net
Brittany Pryce Brittany Pryce 
Born 2/15/93 
Died  8/19/99 
Late Infantile 
Lived in Glenpool, OK 
skpryce@prodigy.net
Stefani Puskar Stefani Marie Puskar
Born 5/14/99
Infantile Batten (INCL)
Lives in Pine Mountain Club, CA
Finnish & American Citizenship
Heidipuskar@hotmail.com


To enter your child(ren) in our Faces of Batten site, either:

1.  Send a photo and the information for the web page to...

Lance Johnston
c/o BDSRA
120 Humphries Dr., Suite 2
Reynoldsburg, OH 43068

Or preferably...  

2.  E-mail an electronic photo (.jpg, .tif, .pcx or .bmp) as an attachment
with the information to Lance Johnston

THESE PHOTOS ARE FOR VIEWING FROM THIS WEBSITE ONLY. THEY MAY NOT BE COPIED, REPRODUCED OR USED IN ANY OTHER MANNER WITHOUT EXPRESS WRITTEN CONSENT OF THE BATTEN DISEASE SUPPORT AND RESEARCH ASSOCIATION. LEGAL ACTION WILL BE TAKEN TO THE FULL EXTENT OF THE LAW FOR ANY UNAUTHORIZED USE, REPRODUCTION OR COPYING OF THESE PHOTOS.


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