BDSRA: Batten Disease Support and Research Association
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faces 
  These are our children, the faces of Batten . . .
    E    F    G   H  

Jacob Adam Ehrisman Jacob Adam Ehrisman & family
Jacob lived 7/6/95 to 4/1/07
Infantile NCL

Newport, PA
ehrisman@pa.net
David Eggleston

David Eggleston 
Born 2/6/84
Died 04/06/04
 
Juvenile NCL 
David lived in Brockport, NY 
emma020684@aol.com

Travis Jack Fair Travis Jack Fair
Late Infantile, 5/23/97 - 3/17/06.
Travis and his family lived in Layton, UT
"Cowboy" Ryan Faret Ryan Faret
Born February 17,1988
Juvenile NCL 
He lives and sings in Deer Park, NY
 
Katie Feyerisen Katie Feyerisen 
Born 10/27/90 
Died 1/14/00 
Late Infantile 
Katie lived in Castlewood, SD
Jerey=hhfiekds Jeremy Fields
Born 1/12/88
Lives in Siler City, NC
Juvenile
Talon Fisher Talon Fisher  
Born 10/27/91  
Died 3/26/97  
Late Infantile  
Lived in Bakersfield, CA
D.J. Fowler

Douglas J. (DJ) Fowler
Born 9/13/93
JNCL
Lives in Torrance, CA

Kali Fox Kaliann Rose Fox
May 26, 2001 - September 30, 2006
Late Infantile NCL
Brick, NJ

mamafox@verizon.net
www.caringbridge.org/visit/kaliannfox
Wes Franklin Wes Franklin 
Born 12/02/81  
Died 09/13/91 
Juvenile/A-Typical 
Wes lived in Tulsa, OK
JoAnn571@msn.com
Melissa Lynn Froio Melissa Lynn Froio 
Born  9/29/94 
Late Infantile NCL 
Lives in Gloucester Township, New Jersey  
grfr@im.se
Chris Gaines Chris Gaines 
Born  12/11/74   
Late Infantile 
Lives in Jemison, Alabama
email:Beckylucas7@wmconnect.com
Aleah Carolyn Galen Aleah Carolyn Galen
Born 5/31/97
Juvenile
Lives in Somerset, WI
email: mkgalen@yahoo.com
Kristen Ann Gallagher Kristen Ann Gallagher  
Born 4/26/91
Died 11/25/99  
Late Infantile   
Lived in Rockaway, NJ
Cole Gardner Cole Gardner
Born 5/3/99
Died 6/19/03
Infantile NCL
Cole lived in Cornelius, OR
Sara Gedeon Sara Gedeon
Born 4/14/97
Died 4/11/06
Late Infantile NCL
Sara lived in Bozeman, MT
Jon Richard Godfrey Jon Richard Godfrey 
Born  9/9/95
Died 1/17/01   
Infantile NCL 
Lived in Elgin, Illinois 
ricgodfrey@excite.com
Chris Goll

Chrismond (Chris) Frederick Goll was born February 20, 1969,
lived in Treichlers, PA and died March 20, 1977 with Late Infantile NCL.

Kerry Goll Kerrick (Kerry) Martin Goll was born July 24, 1967,
lived in Treichlers, PA and died May 13, 1976 with Late Infantile NCL.
Dakota Goodman

Dakota Goodman was born in 1997 and diagnosed with Late Infantile Battens in May 2002.
Dakota passed away July 26, 2005 and lived in Lyons Indiana.

David Grant David Grant
Born 2/2/92
Juvenile
Lives in Garland, ME
Tyler Greene Tyler Greene 
Born  8/25/93
Died  9/9/01  
Late Infantile 
Tyler lived in Washington, UT
Brittani  Nicole Grissitt Brittani Nicole Grissitt   
Born 2/10/93  
Died 11/20/96   
Infantile NCL  
Lived in Augusta, GA
Hector Guerra, Jr.

Hector Guerra, Jr.
Born 8/8/93
Died  7/16/01
Late Infantile
Hector lived in San Jose, California

Dorthy Marie Hall Dorothy Marie Hall 
Born 7/5/71 
Died  2/19/88 
Juvenile 
Lived in St Petersburg, FL
Rose Marie Hall Rose Marie Hall 
Born  9/4/73 
Died 1/24/98 
Juvenile 
Rose lived in St. Petersburg, FL
Brandon Hamlet Brandon Hamlet  
Born  9/20/95
Died  09/01/00
   
Late Infantile, Down Syndrome 
Lived at Fort Meade, MD 
cwhamlet@yahoo.com
Dalton Handy Dalton Handy
Born 6/3/94
Died 5/18/04
Infantile
Lived in Winchester, NH
Kelsie Joan Hardin Kelsie Joan Hardin
Born 3/13/91
Juvenile
Lives in San Jose, CA
Nathan Hardy Nathan Hardy  
Born  3/19/88  
Juvenile NCL  
Lives in Orient, Ohio
Noah Hardy Noah Hardy  
Lived from 1/16/93 to 3/28/08  
Juvenile NCL  
Lived and loved in Orient, Ohio
Terry Hart Terry Hart 
Born  6/29/73 
Died  02/03/00 
Juvenile NCL 
Lived in Gilbertsville, PA
Stephen Barnett Hatchett Stephen Barnett Hatchett
Born 12/25/85
Juvenile
Lives in Nashville, TN
email:randyhatchett@comcast.net
Brandon Hawkins

Brandon Hawkins
Concord NC
Born 7/26/97
Diagnosed 6/8/06 w/ Juvenile NCL
email at chawk328@ctc.net

Jeremy Hawkins Jeremy Hawkins
Concord NC
DOB 4/25/01
Diagnosed 10/30/06 w/ Juvenile NCL
email at chawk328@ctc.net
Tabitha Marie Hendrickson

Tabitha Marie Hendrickson 
Born  7/20/84 and died  3/28/2000 of Juvenile NCL
Tabitha lived in Houston, TX 
Website
email:sblanks@email.msn.com

Nicholas Heuchan Nicholas Heuchan
Born December 18, 1996
Juvenile NCL
Nicholas lives in Baltimore, Maryland
www.nicksbattle.com
Paula Elizabeth Hudson Paula Elizabeth Hudson 
Born  12/02/1989 and died 9/3/02 
Late Infantile NCL 
Paula lived in Eloy, AZ
Taylor McClaine Hudson Taylor McClaine Hudson  
Born  03/19/1991
Died 3/23/05
 
Late Infantile NCL 
Lived in Eloy, AZ
Jessica and Angel

Jessica Hynie
Born 12/12/93
Juvenile NCL
Lives in Loomis, CA

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To enter your child(ren) in our Faces of Batten site,

1.  Send a photo and the information for the web page to:

Lance Johnston
c/o BDSRA
120 Humphries Dr., Suite 2
Reynoldsburg, OH 43068

Or 

2.  E-mail an electronic photo (.jpg, .tif, .pcx or .bmp) as an attachment
with the information to Lance Johnston


THESE PHOTOS ARE FOR VIEWING FROM THIS WEBSITE ONLY. THEY MAY NOT BE COPIED, REPRODUCED OR USED IN ANY OTHER MANNER WITHOUT EXPRESS WRITTEN CONSENT OF THE BATTEN DISEASE SUPPORT AND RESEARCH ASSOCIATION. LEGAL ACTION WILL BE TAKEN TO THE FULL EXTENT OF THE LAW FOR ANY UNAUTHORIZED USE, REPRODUCTION OR COPYING OF THESE PHOTOS.


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