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Brianna
Aaron
Her birth date is August 11, 1999
She lives
in Pompano Beach, Florida.
Soon to be moving back home to Texas.
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Baron
Abdulnour
Born 9/20/98
Late infantile
lives in Burbank, CA
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Anthony
James Adams
Born April 18, 1988
Died December 11, 2003
Late Infantile
Anthony lived in Rosebud, Missouri. |
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Connor
Allbee
Born 9/14/94
Juvenile
Lives in Reno, NV
website: www.connorsbattle.com |
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Anne (Annie) Allio
Born 10/4/98
Juvenile
NCL
Lives in Vacaville, CA |
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Caitlin
(Catey) Allio
Born 10/20/89
Juvenile
NCL
Lives in Vacaville, CA |
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Kari
Elisabeth Anderson
Born 5/25/88
Juvenile NCL
Kari
lives in Carrollton, TX |
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Thomas
Christian Anderson
Born 8/19/98
Infantile NCL
Garden City, Iowa
msbones@netins.net
|
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Natalie
Aurelio
Born
June 24, 1990
Died
Saturday August 28, 2004
Late-Infantile NCL
Lived
in San Jose, California
|
|
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Shannon
"Bulla" Avrett
Born 6/6/94
Infantile NCL
Lived in Hawaii
Moved to Heaven 5/24/06
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Jonathan
(Jon) Bauer
Born 6/17/98 and died 6/23/03 of Late-Infantile NCL
Jon lived in Middletown, Delaware |
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Sergio
Sorin Belu
Born 8-9-99
Late infantile
Lives in Sterling Heights,Mi
sbelu@wowway.com |
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Mark
Andrew Bindl
Born 4/2/61
Died 9/25/95
Juvenile NCL
Lived
in Corona, California |
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 |
Brittni
Blankenship
Born 9-16-90
Juvenile NCL
Lives
in Bartlett, IL
|
|
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Rachael
Lee Bonnell
Born 4/4/80
Died 6/25/96
Juvenile NCL
Lived
in Rochelle, IL |
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Abby
Bortz
Born
10/3/86
Juvenile NCL
Abby
lives in Janesville, WI
|
|
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Mary
Alice Bortz
Born
7/25/84 and died 12/2/02. She had Juvenile NCL and lived in Janesville,
WI
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Bethany
Brantley
Lived 8/4/85 to 4/8/06 with Infantile
Slidell,
LA |
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Justin
Lambert Breaux
Born 10/8/96
Died 5/25/98
Infantile
Lived
in Vinton, LA |
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Danny
Breuer
Born 10/27/84
Died 3/7/01
Juvenile
Lived
in Hamilton, OH |
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Justin
Ryan Brinkley
Born 10/25/86
Died 1/7/98
Late Infantile
Lived
in Leesville, LA |
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Rachel
Leanette Brinkley
Born 10/5/87
Died 1/29/96
Late Infantile
Lived
in Leesville, LA |
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Jonathon
Brown
Born 10/26/91
Juvenile NCL
Lives
in Homedale, ID |
|
 |
Tawnya
Lynn Brown
Born 3/5/75
Died 12/4/98
Juvenile
Lived
in Kalispell, MT |
|
 |
Nicholas
Burns
JNCL
Born August 11 1995
Lives in St. Petersburg FL
www.curebattensdisease.com
|
|
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Jessie
Bushley
Born 8/12/90
Juvenile NCL
Lives
in Utica, NY
LilMzPms1@aol.com
|
|
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Bryce
Butenhoff
Born 10/17/1999 and flew on on April 7th, 2008
Late infantile NCL
Lived and loved in Mora, Minnesota
laurahelm@hotmail.com |
|
 |
Lulu
Xochi Calderon
08/01/98--03/25/08
Late Infantile
Los Angeles, California |
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 |
Garrett
Davis Campbell
Born: 7/19/05 Diagnosed: 8/14/07 Died: 12/30/07
Infantile NCL
Garrett lived in Charlotte, NC
www.garrettswings.org
Dad’s email: info@garrettswings.org
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|
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Jerry
Cannon
Born 8/26/82
Died 2/18/91
Late Infantile NCL
Lived in Elwood, Indiana |
|
 |
Patricia
Cannon
Born 8/26/87
Died 12/1/92
Late Infantile NCL
Lived in Elwood, Indiana |
|
 |
Danielle
Carbrey
Born: 02/16/1993
Juvenile NCL
Lives in St Charles, MO |
|
 |
Michelle
Amanda Carlson
Born - 6/28/91
Died - 4/3/04
Infantile
Lived in Elmhurst, IL |
|
 |
Misty
Dawn Cartwright
Born 7/24/86
Died 6/30/93
Late Infantile NCL
Lived in Hatteras, NC
mupydawn@yahoo.com |
|
 |
David
Kendall Cartwright
Born 01/09/95
Died 4/30/00
Late Infantile NCL
Lived In Hatteras, NC
News article
mupydawn@yahoo.com |
|
 |
Hannah
June Caulfield
Born 8/12/93
Died 9/24/99
Late Infantile NCL
Lived
in Somerset, NJ |
|
 |
Dominic
Ceravone
Born 9/26/95 and died 5/24/05
Late Infantile NCL
Lived
in West Haven, CT
|
|
 |
Alexandria
Marie Chance
Born 6/1/98
Died 8/9/02
Infantile NCL
Allie
lived in Prattville, AL.
PebblesChance@aol.com
|
|
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Robert
John Cherry
Born 11/27/80
Died 11/29/03
Juvenile NCL
Robert lived in Tarboro, NC |
|
 |
Spencer
Grey Childress
Born 5/5/82
Went with the angels on 9/9/92
"Lil Man" was loved by many in Carthage, NC |
|
 |
Dareien
Brooke Clark
Born 3/30/93 and died 7/10/03 of Late
Infantile NCL
Lived
in Marseilles, Illinois
cyndi1@ameritech.net
|
|
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Robbie
Clements
Born 11/1/96
Died 5/3/02
late infantile
Lived in Lizella, GA |
|
 |
Rachel
Esther Coble
Born on Sep. 2, 1980 and passed away on Nov. 12, 2003
Rachel lived in Seattle, WA
Memorial
Webpage
|
|
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Rebecca
(Becca) Nicole Collins
Born 6/12/99
Diagnosed March 2005 with Infantile NCL
Lives in Mokena, Illinois
DawnC1623@aol.com
www.carepages.com,
Carepage name Beccabooper2008 |
|
 |
Kevin
Copous
Born 6/19/79
Lives in Bradford, TN
Juvenile NCL
|
|
 |
Christopher
Michael Cornelius
Born 9/22/78
Died 9/3/02
Juvenile
Lived in Blue Ridge, GA |
|
 |
Zachary
Brandon Cramer
Born 2/12/95
Late Infantile NCL
Lives
in Jamestown, Ohio
|
|
 |
Matthew
Crimmins
Born June 20, 1976
Juvenile NCL
Matt lives in Port Huron, MI
|
|
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Jeffrey
A. Crissinger
July 30, 1995 - May 8, 2003
Infantile NCL
Lived in Spring, Texas
Website:
www.battenangels.com
Email: acrissinger@houston.rr.com
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|
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Tevin
A. Crissinger
Born August 29, 2000
Died April 21, 2004
Infantile NCL
Lived
in Spring, Texas
Website: www.battenangels.com
Email: acrissinger@houston.rr.com
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|
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Rodney
Cronk
Born 8/20/57 and died 4/21/05
Adult Onset - Kufs Disease
Lived in Liberty, MO
|
|
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Clifford
Ray Dahl
Born April 8, 1997
Juvenile NCL
Lives in Chatham, IL |
|
 |
Cali
Davies
Born: 11/3/93
Infantile variant
Lives
in Woodinville, WA |
|
 |
Nikki
Mae Davis
Born 6/18/91
JNCL
Lives in Hammond, NY
email- wrenchmehard@yahoo.com
|
|
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Joel
DeBord
Born 5/23/87
Juvenile NCL
lives in Burlington, WI
website-
joeldfamily.homestead.com
parent email-mdebord@wi.rr.com |
|
 |
Blake
Dell'Aringa
Born 1/11/02
Diagnosed 6/13/06
Late Infantile NCL
Blake lives in Sacramento, Ca
website:
www.blakespurpose.org
e-mail mom: dawnstransport@aol.com
|
|
 |
Megan
DePew
Born: 5/22/87
Juvenile NCL
Lives
in Big Rapids, MI |
|
 |
Christopher
Paul DiCapua
May 8, 1995 to January 23, 2004
Late Infantile NCL
Christopher lived, loved and laughed in Middlesex, NJ |
|
 |
Remy
Douglas
Born: 10/08/87
Died:
12/18/01
Late Infantile Variant
Lived
in Woodinville, WA
|
|
 |
Emily
Dugger
Born: 4/18/81
Juvenile NCL
Lives
in Madisonville, KY
parent
email-sldugger@newwavecomm.net
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