Please check back in the fall for the next request for letters of intent.
BDSRA is the largest nonprofit organization in North America dedicated to funding research, advancing education, and providing family support services. As a rare, fatal, inherited disorder of the nervous system, Batten disease has no known treatment or cure. Private funding for Batten disease research has advanced through partnerships of BDSRA with family foundations and European Batten organizations. Co-funders with BDSRA for research projects in 2016 included BDSRA- Australia, Drew’s Hope, Noah’s Hope-Hope4Bridget, Beyond Batten Disease Foundation, and the Thisbe and Noah Scott Foundation.
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