Bridget Kennicott was born on November 11, 2004, to proud parents Sara and Dave and big brother Harrison. The Carpentersville, Illinois family felt complete, with their energetic little daughter soon known as “Miss Busy B.” She barreled her way into her toddler years, until the family met their first medical puzzle in 2008. With no warning , the Kennicotts faced the frightening experience of carrying their daughter to the emergency room with a seizure. It would be 16 months of testing, consultations, medications, and questions before a diagnosis in April of 2009 could be definitive that Bridget had late infantile Batten disease (LINCL). According to Sara, “there is no preparation for devastating news like this. We knew that our little girl struggled with health and development, this, however, was far beyond our imagination.” “Our journey with Bridget is to take one day at a time,” says Sara. “We realize our efforts to help find a treatment may be too late for Bridget, but we forge ahead to fight for other children like Bridget.” Through their shock, grief, disbelief and pain, the Kennicotts were determined to seek answers and find ways to bolster Batten disease research, which they discovered was underfunded and limited by being categorized as a rare disease.