Press and Media

Media Contacts *

If you are a journalist or member of the media and would like more information or to arrange an interview, please contact:

Margie Frazier, Ph.D., Executive Director
Toll-free: 1-800-448-4570 ext. 11
Direct office: 614-973-6011
1175 Dublin Road, Columbus, Ohio 43215

Facebook: www.facebook/BDSRA
Twitter: www.twitter/BDSRA

Media – Raising Awareness About Batten Disease *

Public Service Announcements (PSA’s) – coming soon

Guidelines for Reporting and Writing about People with Disabilities – coming soon

Press Releases and Statements – coming soon

Fast Facts about Batten Disease – coming soon

Learn about our families affected by Batten disease

Find a Batten disease expert

Logos/Flyers *

To request logos for publication, please email Tracy Kirby.

Batten disease informational brochure

Batten disease ophthalmology flyer

Batten disease science flyer