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Board of Directors

Kim Zellmer, Esq. President
Attorney, private practice
Mission Hills, KS

Rob Geer — 1st Vice President
Kelly Services Business Development
Caledonia, MI

Tracy VanHoutan 2nd Vice President
Chicago Board of Exchange
Downers Grove, IL

Joel KargJoel Karg, CPA — Treasurer
Dublin, OH

Christopher Lowden, PhD — Secretary
Technical Account Manager, Accelrys Inc.
Raleigh, NC

Craig Benson — At Large
CEO, Rules Based Medicine
Austin, TX

Mike Collins — At Large
Durable Medical Equipment Sales
Mokena, IL


Dave Pearce, PhD
Sioux Falls, SD




 Tony Ferrandino
Tony Ferrandino
Financial Advisor, Merrill Lynch
Newtown, PA


Barbara Wuebbels, RN, MS
Phoenix, AZ

Medical Advisory Board

  • Katherine Sims, MD — Chair
    Director, Developmental Neurogenetics Clinic
    Massachusetts General Hospital, Boston, MA
  • Heather Adams, PhD
    Child Neuropsychologist
    University of Rochester, Rochester, NY
  • Rose-Mary Boustany, MD
    Director, Neurogenetics
    Pediatric Neurology and Genetics
    American University, Beirut, Lebanon
  • Emily de los Reyes, MD
    Pediatric Neurologist
    Nationwide Children’s Hospital
    Columbus, OH
  • Jonathan Mink, MD, PhD
    Director, University of Rochester Batten Diseases Diagnostic and Clinical Research Center
    University of Rochester, Rochester, NY

Scientific Advisory Board

  • Sandra Hofmann, MD, PhD – Chair
    Professor, Internal Medicine, Molecular Genetics
    University of Texas Southwestern Medical Center, Dallas, TX
  • Jonathan Cooper, PhD
    Professor at the Institute of Psychiatry
    King’s College London, London, UK
  • Susan L. Cotman, PhD
    Assistant Professor of Neurology, Harvard Medical School and Massachusetts General Hospital
    Harvard Medical School, Cambridge and Massachusetts General Hospital, Boston, MA
  • Beverly L. Davidson, PhD
    Professor of Medicine, Neurology and Physiology & Biophysics,
    University of Iowa
  • Mark S. Sands, PhD
    Professor, Department of Medicine, Division of Oncology
    Washington University in St. Louis, St. Louis, MO
  • David E. Sleat, PhD
    Associate Professor
    Center for Advanced Biotechnology and Medicine
    University of Medicine and Dentistry of New Jersey-Robert Wood Johnson Medical School, Piscataway, NJ