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Board of Directors

Kim Zellmer, Esq. — President
Attorney, private practice
Mission Hills, KS

Rob Geer — 1st Vice President
Kelly Services Business Development
Caledonia, MI

Tracy VanHoutan — 2nd Vice President
Chicago Board of Exchange
Downers Grove, IL

Joel KargJoel Karg, CPA — Treasurer
Dublin, OH

Christopher Lowden, PhD — Secretary
Technical Account Manager, Accelrys Inc.
Raleigh, NC

Craig Benson — At Large
CEO, Rules Based Medicine
Austin, TX

Mike Collins — At Large
Durable Medical Equipment Sales
Mokena, IL

Christopher Dainiak, MD — At Large
Physician, NH Gastroenterology
Bedford, NH




 Tony Ferrandino
Tony Ferrandino
Financial Advisor, Merrill Lynch
Newtown, PA

Debbie Ham
Executive Director, Support for Early Learning & Families
Vancouver, WA

Medical Advisory Board

  • Katherine Sims, MD — Chair
    Director, Developmental Neurogenetics Clinic
    Massachusetts General Hospital, Boston, MA
  • Heather Adams, PhD
    Child Neuropsychologist
    University of Rochester, Rochester, NY
  • Rose-Mary Boustany, MD
    Director, Neurogenetics
    Pediatric Neurology and Genetics
    American University, Beirut, Lebanon
  • Emily de los Reyes, MD
    Pediatric Neurologist
    Nationwide Children’s Hospital
    Columbus, OH
  • Jonathan Mink, MD, PhD
    Director, University of Rochester Batten Diseases Diagnostic and Clinical Research Center
    University of Rochester, Rochester, NY

Scientific Advisory Board

  • Sandra Hofmann, MD, PhD – Chair
    Professor, Internal Medicine, Molecular Genetics
    University of Texas Southwestern Medical Center, Dallas, TX
  • Jonathan Cooper, PhD
    Professor at the Institute of Psychiatry
    King’s College London, London, UK
  • Susan L. Cotman, PhD
    Assistant Professor of Neurology, Harvard Medical School and Massachusetts General Hospital
    Harvard Medical School, Cambridge and Massachusetts General Hospital, Boston, MA
  • Beverly L. Davidson, PhD
    Professor of Medicine, Neurology and Physiology & Biophysics,
    University of Iowa
  • Mark S. Sands, PhD
    Professor, Department of Medicine, Division of Oncology
    Washington University in St. Louis, St. Louis, MO
  • David E. Sleat, PhD
    Associate Professor
    Center for Advanced Biotechnology and Medicine
    University of Medicine and Dentistry of New Jersey-Robert Wood Johnson Medical School, Piscataway, NJ