1-800-448-4570
The BDSRA Purpose
- Maximize the opportunities of victims of Batten to lead as normal lives as possible.
- Provide a communication network, information and emotional support to families of persons with Batten Disease.
Finding Solutions
2009 Request For Proposal
BDSRA is committed to reviewing and helping fund advancements in the treatment and prevention of Batten disease.
BDSRA is committed to reviewing and helping fund advancements in the treatment and prevention of Batten disease.
Developing Awareness
BDSRA 2009 Conference in St. Louis, MO
Annual Batten Disease Support and Research Association Conference is Thursday, July 16th thru Sunday, July 19th. Details in April's issue of The Illuminator.
Annual Batten Disease Support and Research Association Conference is Thursday, July 16th thru Sunday, July 19th. Details in April's issue of The Illuminator.
Family Stories
With a little help, special kids score
The Cat5 Canes bring hockey to children often left out of team sports. Read Story
The Cat5 Canes bring hockey to children often left out of team sports. Read Story